The following lists some of the internet sites related to health-related quality of life measurement that may be of use. The resources listed are by no means exhaustive, and cannot be assumed to be current - internet resources tend to be in a state of continual change.
A. Societies/ facilities related to the application of Quality of Life measures in healthcare
International Society for Quality of Life Research or ISOQOL, the society most concerned with the scientific study of quality of life relevant to health and healthcare: http://www.isoqol.org/
International Society for Quality of Life Studies: http://www.cob.vt.edu/market/isqols/
Society for Medical Decision Making: http://www.smdm.org/main.html
International Health Economics Association: http://healtheconomics.org/cgi-bin/WebObjects/ihea
Drug Information Association: http://www.diahome.org/docs/index.cfm
International Society for Pharmacoeconomics and Outcomes Research (ISPOR): www.ispor.org
B. Quality of Life/ Health Economics/ Evidence-based medicine sites providing useful links
QOLID Quality of Life Instruments Database: http://www.qolid.org/
MAPI Research Institute: www.mapi-research-inst.com
Medical Outcomes Trust (access to SF-36): http://www.outcomes-trust.org/instruments.htm
RAND Health: www.rand.org/health_area
TRIAGE Trent Research Information Access Gateway - Health Economics: http://www.shef.ac.uk/~scharr/triage/index/health.htm
REES France Health Evaluation Network: http://www.rees-france.com/sites.htm
SNOF LA QUALITÉ DE VIE: http://www.snof.org/melody/interface/qualite/qualite.php?rubrique=liens
Evaluación Clinica Y Economica de Medicamentos: http://www.farmacoeconomia.com/CalidadDeVida/CalidadDeVidaInstrumentosNew.htm
Archives and list of UK Evidence-Based Health Web mailing list and archive, http://www.jiscmail.ac.uk/lists/evidence-based-health.html , 'an electronic discussion forum and information resource for people working in and teaching evidence-based health care'.
C. On-line statistical texts
StatSoft Inc. Electronic Statistics Textbook: http://www.statsoft.com/textbook/stathome.html.
Introductory Statistics: Concepts, Models, and Applications
David W. Stockburger, Southwest Missouri State University: http://www.psychstat.smsu.edu/introbook/sbk00.htm
Multivariate Statistics: Concepts, Models, and Applications
David W. Stockburger, Southwest Missouri State University: http://www.psychstat.smsu.edu/multibook/mlt00.htm
Bill Trochim’s Social Research Methods: http://trochim.human.cornell.edu/
D. Health/ Medical Databases and Journals
databases concerned with health related quality of life measurement are
PUBMED and PsycINFO:
PubMed, a service of the National Library of Medicine, includes over 14 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources. See http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
PsycINFO is a database of psychological literature from the 1800s – present. See http://www.apa.org/psycinfo/
Further relevant material may be located via EMBASE (biological and pharmaceutical database); CINAHL (nursing and allied health); The Cochrane Library (systematic reviews, effectiveness reviews, methodology reviews); ECONLIT (economics); Sociological abstracts, and through the ISI web of science (includes Science citation index expanded, and Social sciences citation index). See also the AMI (Australian medical index).
The British Medical Journal (BMJ) at www.bmj.com includes a substantial proportion of HQoL articles.
The Institute for Objective Measurement provides a large amount of information concerning Modern Test Theory from the perspective of the Rasch Model, including Rasch Measurement Transactions: http://www.rasch.org/