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Internet Resources
 

The following lists some of the internet sites related to health-related quality of life measurement that may be of use.  The resources listed are by no means exhaustive, and cannot be assumed to be current -  internet resources tend to be in a state of continual change.  

 

 A.  Societies/ facilities related to the application of Quality of Life measures in healthcare

 International Society for Quality of Life Research or ISOQOL, the society most concerned with the scientific study of quality of life relevant to health and healthcare: http://www.isoqol.org/  

 International Society for Quality of Life Studies: http://www.cob.vt.edu/market/isqols/

 Society for Medical Decision Making:  http://www.smdm.org/main.html

 International Health Economics Association: http://healtheconomics.org/cgi-bin/WebObjects/ihea

 Drug Information Association:  http://www.diahome.org/docs/index.cfm

 International Society for Pharmacoeconomics and Outcomes Research (ISPOR):  www.ispor.org

  

B.  Quality of Life/ Health Economics/ Evidence-based medicine sites providing useful links 

QOLID Quality of Life Instruments Database:  http://www.qolid.org/

 MAPI Research Institute: www.mapi-research-inst.com  

Medical Outcomes Trust (access to SF-36): http://www.outcomes-trust.org/instruments.htm  

RAND Health: www.rand.org/health_area  

TRIAGE  Trent Research Information Access Gateway - Health Economics:  http://www.shef.ac.uk/~scharr/triage/index/health.htm

 REES France Health Evaluation Network:  http://www.rees-france.com/sites.htm

 SNOF LA QUALITÉ DE VIE: http://www.snof.org/melody/interface/qualite/qualite.php?rubrique=liens

 Evaluación Clinica Y Economica de Medicamentos:  http://www.farmacoeconomia.com/CalidadDeVida/CalidadDeVidaInstrumentosNew.htm

Archives and list of UK Evidence-Based Health Web mailing list and archive, http://www.jiscmail.ac.uk/lists/evidence-based-health.html , 'an electronic discussion forum and information resource for people working in and teaching evidence-based health care'.

  

C.  On-line statistical texts

 StatSoft Inc. Electronic Statistics Textbook:  http://www.statsoft.com/textbook/stathome.html.

Introductory Statistics: Concepts, Models, and Applications
David W. Stockburger, Southwest Missouri State University:  http://www.psychstat.smsu.edu/introbook/sbk00.htm

Multivariate Statistics: Concepts, Models, and Applications
David W. Stockburger, Southwest Missouri State University: http://www.psychstat.smsu.edu/multibook/mlt00.htm

 Bill Trochim’s Social Research Methods: http://trochim.human.cornell.edu/

 

 D.  Health/ Medical Databases and Journals

 The principal databases concerned with health related quality of life measurement are PUBMED and PsycINFO:
PubMed, a service of the National Library of Medicine, includes over 14 million citations for biomedical articles back to the 1950's. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources. See http://www.ncbi.nlm.nih.gov/entrez/query.fcgi   
PsycINFO is a database of psychological literature from the 1800s present.  See
 http://www.apa.org/psycinfo/

Further relevant material may be located via EMBASE (biological and pharmaceutical database); CINAHL (nursing and allied health); The Cochrane Library (systematic reviews, effectiveness reviews, methodology reviews); ECONLIT (economics); Sociological abstracts, and through the ISI web of science (includes Science citation index expanded, and Social sciences citation index) See also the AMI (Australian medical index).

The British Medical Journal (BMJ) at www.bmj.com includes a substantial proportion of HQoL articles.

  

E. Miscellaneous

 The Institute for Objective Measurement provides a large amount of information concerning Modern Test Theory from the perspective of the Rasch Model, including Rasch Measurement Transactions: http://www.rasch.org/ 

  

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